Charlie is a very bright and sociable 16 month old child, who has a condition called Spinal Muscular Atrophy Type 2 (SMA II). This means that he will never be able to walk or crawl, and although currently he has the full use of his arms eventually this muscle wasting disease will take even this from him. He has difficulty swallowing and going to the toilet because of his weak muscles.
Charlie is very much loved by his whole family and all those who know him but it is so frustrating for all of us to watch him struggle to do the same things other children his age can do. The best way to nurture his intelligence and to keep what muscle strength he has at the moment is to get him in a powered wheelchair, this will give him some degree of independence that other children his age enjoy.
However despite the recommendations of the specialists and physiotherapists the NHS are unable to consider him for a wheelchair until he is Five years old! If we were to wait until he is Five, it could seriously delay his development and for such an intelligent child this would be a waste. All parents want to give their children the best in life, and for Charlie's parents this does not mean fancy toys or holidays this simply means giving their son the gift of mobility, something which we all take for granted.
So in order for us to do this we need to raise the £18,000 it costs to get him the wheelchair he not only needs but also deserves. He will need several other things in his life to aid his development and to contain the condition as much as possible but for now the most important thing for Charlie is the wheelchair alongside the continued love and support of his friends and family.
If you are in a position to help this extraordinarily bright and sociable little boy to get himself mobile and start enjoying the world the way he wants to then please dig deep and give whatever you can. Any contribution is much appreciated, and the support we have already received is absolutely amazing, but the journey has only just begun for little Charlie Bolton!
We will keep you up to date with all the fundraisers we are having and details for you to participate too.
Please use the links below to see more information about Charlie, or to donate. If anyone would like a leaflet about Charlie please send me your address and we will get one posted out to you a.s.a.p or we can e-mail them to you.
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